References Featured in Course

• Amendah, D. D., Mvundura, M., Kavanagh, P. L., Sprinz, P. G., & Grosse, S. D. (2010).Sickle-cell disease related pediatric medical exependitures in the U.S. American Journal of Preventive Medicine, 38(4 Suppl):S550-6.
• American Academy of Pediatrics, Council On Sports Medicine and Fitness and Council on School Health. (2011). Policy Statement: Climatic Heat Stress and Exercising Children and Adolescents. Pediatrics, 2011; 128:3 e741-e747.
• American Academy of Pediatrics Section on Hematology/Oncology and Committee on Genetics. (2002, reaffirmed 2006 & 2011). Health Supervision for Children with Sickle Cell Disease. Pediatrics, 109, 526-535.
• American Sickle Cell Anemia Association.
• American Society of Hematology. (2012). Statement on Screening for Sickle Cell Trait and Athletic Participation.
• Arkansas Department of Health. (2011). Newborn Screening.
• Boyd, J. H., Macklin, E. A., Strunk, R. C., & DeBaun, M. R. (2006). Asthma is associated with acute chest syndrome and pain in children with sickle cell anemia. Blood, 108 (9), 2923-2927.
• Campinha-Bacote, J. (2002). The Process of Cultural Competence in the Delivery of Healthcare Services: A Cultural Competent Model of Care. Transcultural C.A.R.E. Associates, Cincinnati, OH.
• Carlson, K. J., Eisenstat, S. A., & Ziporyn, T. D. (2004). The New Harvard Guide to Women's Health. Cambridge, MA: Harvard University Press.
• Centers for Disease Control and Prevention. (2012). Sickle Cell Disease.
• Centers for Disease Control and Prevention. (2007). Sickle Cell Disease and Other Hemoglobinopathies. Newborn Screening Quality Assurance Program.
• Centers for Disease Control and Prevention. (2011). World Sickle Cell Awareness Day.
• Dowling, M. M., Quinn, C. T., Rogers, Z. R., & Buchanan, G. R. (2010). Acute silent cerebral infarction in children with sickle cell anemia. Pediatric Blood & Cancer, 54(3), 461-464. doi: 10.1002/pbc.22242.
• Eckman, J. & Platt., A. (2004). Sickle Cell Information Center Protocols.
• Kaye, C. I. & American Academy of Pediatrics Committee on Genetics. (2006, reaffirmed 2011). Introduction to the newborn screening fact sheets. Pediatrics, 118(3), 1304-1312, doi: 10.1542/peds.2006-1782.
• Lane, P. A., Buchanan, G. R., Hutter, J. J., Austin, R. F., Britton, H. A., Rogers, Z. R., & Lloyd-Puryear, M. A. for the Sickle Cell Disease Care Consortium. (2001). Sickle Cell Disease in Children and Adolescents: Diagnosis Guidelines for Comprehensive Care, and Care Paths and Protocols for Management of Acute and Chronic Complications.
• March of Dimes. (2008). Sickle Cell Fact Sheet
• Mayo Clinic. (2011). Sickle Cell Anemia: Symptoms.
• National Collegiate Athletic Association. (2010). A Fact Sheet for Student-Athletes, Sickle Cell Trait.
• National Diabetes Information Clearinghouse. (2008). Sickle Cell Trait and Other Hemoglobinopathies and Diabetes: Important Information for Physicians.
• National Heart Lung and Blood Institute. (2012). Sickle Cell Disease Research & Care web page.
• National Heart Lung and Blood Institute. (2011). Our Story: Living with and Managing Sickle Cell Disease (Nicholas H.).
• Nemours Foundation. (2012). About Sickle Cell Disease in teens.
• Quinn, C. T., Rogers, Z. R., McCavit, T. L., & Buchanan, G. R. (2010). Improved survival of children and adolescents with sickle cell disease. Blood, 115(17): 3447-3452, doi:10.1182/blood-2009-07-233700.
• Quinn, C.T., Rogers, Z.R., & Buchanan, G.R. (2004). Survival of children with sickle cell disease. Blood, 103/11, 4023-4027.
• Sickle Cell Disease Association of America. (2012). About Sickle Cell Disease.
• Sickle Cell Information Center.
• Southwestern Comprehensive Sickle Cell Center.
• Texas Department of State Health Services. (2012). FACT/ACT Sheets.
• Texas Department of State Health Services. (2012). Genetics Provider List.
• Texas Department of State Health Services. (2012). Newborn Screening Clinical Care Coordination.
• Texas Department of State Health Services. (n.d.). Newborn Screening Specimen Collection Video.
• Texas Department of State Health Services. (2012). Newborn Screening Laboratory.
• Texas Department of State Health Services. (2011). Texas Health Steps Medical Checkup Periodicity Schedule for Infants, Children and Adolescents.
• Texas Department of State Health Services. (2012). Newborn Screening Remote Data Services.
• Texas Department of State Health Services. (2012). Pediatric Hemoglobinpathy Consultants.
• U.S. Department of Health and Human Services. Health Resources and Services Administration. (2012). Baby’s First Test.
• U.S. Department of Health and Human Services. (2011). Sickle Cell Initiative.
• U.S. Government Accountability Office. (2003). Newborn Screening: Characteristics of State Programs.
• Williams, T. M., Mwangi, T. W., Roberts, D. J., Alexander, N. D., Wambua, S., Kortok, M. … Marsh, K. (2005). An immune basis for malaria protection by the sickle cell trait. PLOS Medicine, 2(5): e128. doi:10.1371/journal.pmed.0020128.
• Yusuf, H. R., Atrash, H. K., Grosse, S. D., Parker, C. S., & Grant, A. M. (2010). Emergency department visits made by patients with sickle cell disease: A descriptive study, 1999-2007. American Journal of Preventive Medicine, 38(4 Suppl):S536-41.

Additional References

• Aidoo, M., Terlouw, D. J., Kolczak, M. S., McElroy, P. D., ter Kuile, F., Kariuki S., … & Udhayakumar, V. (2002). Protective effects of the sickle cell gene against malaria morbidity and mortality. The Lancet, 359:9314, 1311-1312.
• Adams, R. J., et al. (1997). Long-term stroke risk in children with sickle cell disease screened with transcranial doppler. Annals of Neurology, 42, 699-704.
• Adams, R. J., et al. (1998). Prevention of first stroke by transfusions in children with sickle cell anemia and abnormal results on transcranial Doppler ultrasound. The New England Journal of Medicine, 339, 5-11.
• Ashley-Koch, A., Yang, Q., & Olney, R.S. (2000). Sickle hemoglobin (Hb S) and sickle cell disease: A HuGE review. American Journal of Epidemiology, 151:9, 839-845.
• The Council of Regional Networks for Genetics Services (CORN). (1995). National newborn screening report—1992. New York, NY: The Council of Regional Networks for Genetic Services.
• Forget, B. G., Higgs, D. R., Steinberg, M., & Nagel, R. L. (2001). Disorders of Hemoglobin: Genetics, Pathophysiology and Clinical Management. Cambridge University Press; Cambridge, UK.
• Harmon, K. G., Asif, I. M., Klossner, D., & Drezner, J. A. (2011). Incidence of sudden cardiac death in national collegiate athletic association athletes. Circulation, 123 (15): 1594–600.
• Information Center for Sickle Cell and Thalassemic Disorders. (2002). Transient Aplastic Crisis in Hemolytic Anemias.
• Kark, J. (2000). Sickle Cell Trait. Howard University School of Medicine, Center for Sickle Cell Disease.
• Lab Tests Online. (2009). Hemoglobin Variants.
• Lin, K. & Barton, M. (2007). Screening for Hemoglobinopathies in Newborns: Reaffirmation Update for the U.S. Preventive Services Task Force. Evidence Synthesis No. 52. Rockville, MD: Agency for Healthcare Research and Quality. AHRQ Publication No. 07-05104-EF-1.
• Pegelow, C. H., Macklin, E. A., Moser, F. G., Wang, W. C., Bello, J. A., Miller, S. T., … & Kinney, T.R. (2002). Longitudinal changes in brain magnetic resonance imaging findings in children with sickle cell disease. Blood, 99(8), 3014-18.
• Smith, W. R., Penberthy, L. T., Bovjerg, V. E., McClish, D. K, Roberts, J. D., Dahman, B., … & Roseff, S. D.. (2008). Daily assessment of pain in adults with sickle cell disease. Annals of Internal Medicine, 148, 94-101.
• Tarini B. A., Brooks, M. A., Bundy, D. G. (2012). A policy impact analysis of the mandatory NCAA sickle cell trait screening program. Health Services Research, 47:446-461.