Texas Health and Human Services / Texas Health Steps

Sickle Cell Disease and Trait:
What Texas Health Steps Providers Need to Know

How to respond when sickle cell disease or trait is diagnosed, provide ongoing treatment and care management, and connect families with specialists and helpful resources.

Choose any section below to learn more.

Many children with sickle cell anemia (are) not receiving lifesaving screening and treatment.

Centers for Disease Control and Prevention, 2022

You Can Make a Difference

Sickle cell disease is a lifelong illness usually diagnosed after birth through newborn screening. However, U.S. data show that most children with sickle cell disease do not receive regular screening for stroke risk and treatment for symptoms such as pain. As a Texas Health Steps provider, you play a key role in maintaining the health of a child with sickle cell disease or trait. You can help demystify sickle cell information for families, ensure annual screening and regular treatment regimens, refer young patients to a pediatric hematologist and work to remove barriers to health care for sickle cell disease. With proper health care, individuals with sickle cell disease can live full lives and enjoy most activities.