CE Credit

Transition Services for Children and Youth with Special Health-Care Needs

Welcome to the training on Transition Services for Children and Youth with Special Health-Care Needs provided by the Texas Health and Human Services Commission (HHSC) and the Texas Department of State Health Services (DSHS).

Credit hours: 1.50 CE

Goal

The goal of this module is to equip Texas Health Steps providers and other health-care professionals to initiate and implement health-care transition planning services for children and youth with chronic health conditions or disabilities at pivotal points, especially as youth approach school age, adolescence, and adulthood.

Target Audience

Texas Health Steps providers and other interested health-care professionals.

Specific Learning Objectives

After completing the activities of this module, you will be able to:

  1. Formulate a strategy to address the health, education, and social needs of all children and youth, with emphasis on those with special health-care needs, at key transition points, especially as they approach school age, adolescence, and adulthood.
  2. Differentiate and integrate the functions of health-care professionals involved in transition assistance for youth with special health-care needs.
  3. Apply legal requirements and appropriate guidelines for aiding the transition of children and youth with special health-care needs as they approach school age, adolescence, and adulthood. 

Please note this module expires on 3/12/2023.

This module was released on 3/12/2020.

Accreditation Statement

Disclosures

Transition Resources by Topic

General Information about Transition:

American Academy of Pediatrics guidelines:

Got Transition. Resources about a variety of transition topics for youth, families, and health-care providers. 

Health Care Transition Initiative, Institute for Child Health Policy, University of Florida Health Care Transition Workbooks.

Health Services for Children with Special Needs. Health Care Transition for Adolescents and Young Adults CME training.

Navigate Life Texas: Transition to Adulthood. In-depth information for families of children with disabilities or special health-care needs about support, resources, and links to available services. 

Texas Department of Family and Protective Services. Transitional Living Services.

Texas Parent to Parent. Peer support and training to improve the lives of Texas children who have disability, chronic illness, and/or special health-care needs.

Assisted Living

Texas 24-Hour Residential Services web page. Information about residential care, including nursing homes and assisted living facilities in the community.

Texas Health and Human Services Commission's Area Agencies on Aging web page, for information on supportive housing resources.

Attendant Services

Texas Health and Human Services Commission's Day Activity and Health Services.

Texas Health and Human Services Commission’s Community Attendant Services (personal care services).

Case Management

Texas Health and Human Services Commission. Case Management Providers for Children and Pregnant Women.

  • Download the case management referral form (scroll down to Forms) and fax it to the Texas Health Steps Special Services Unit at 512-533-3867.
  • Find a case manager with the DSHS Case Management Providers locator map and make a direct referral to a case management provider.
  • Find a community-based organization that provides case management and support  services to children with special health-care needs and their families.

Early Childhood Intervention 

Early Childhood Intervention (ECI) Services.

ECI Provider Referral and Feedback form.

ECI Qualifying Diagnosis Search web page.

Texas Education Agency (TEA) auditory and visual impairment rule, 10 TAC Section 89.1040.

Education and Employment Resources

Communities in Schools, works within the publicschool system to provide students with needed resources.

Early Childhood Special Education (ESCE) program (formerly known as Preschool Program for Children with Disabilities [PPCD], a title that still may be used on some websites). Provides the many supports and opportunities for Local Education Agency (district and charter schools) staff who provide educational services for children ages birth through 5 years who have disabilities.

Easterseals. Information about education, employment training, and life services for children and adults through community and home-based services.

Individualized Education Programs (IEPs). Transition in the IEP web page.

Head Start, promotes school readiness for children ages 4 years and younger.

National Center on Secondary Education and Transition. Resources, technical assistance, and information about secondary education and transitions for youth with disabilities.

National Collaborative on Workforce and Disability.

National Technical Assistance Center on Transition. Resources to prepare high school graduates for success in postsecondary education and employment.

Texas Council for Developmental Disabilities. Resource Guide on Higher Education for People with Disabilities.

Texas Education Agency Educational Service Centers. The TEA has 20 Educational Services Centers in Texas that answer questions about the transition process in schools.

Texas Project First. A parent-to-parent website sponsored by the Family to Family Network that provides resources for parents and families of students with disabilities in Texas.

Texas Workforce Commission. Resources for those who want to go to school, seek job training, or find employment.

Think College. Resources and tools for students with disabilities, families, and professionals.

University of Washington’s DO-IT (Disabilities, Opportunities, Internetworking, and Technology) Center. College: You Can Do It! web page.

Financial Matters and Resources

American Academy of Pediatrics, policy statement. (2015). Supplemental Security Income (SSI) for Children and Youth With Disabilities.

FinAid's Financial Aid for Students with Disabilities.

Social Security Administration (SSA): Benefits for Children with Disabilities.

Social Security Administration. Supplemental Security Income Program Entry at Age 18 and Entrants' Subsequent Earnings.

University of Washington. DO-IT's College Funding for Students with Disabilities.

Health Benefits

Social Security Administration. Disability Evaluation Under Social Security, prepared for physicians and other health-care providers.

STAR Kids. Texas Medicaid managed care for children with disabilities who are ages birth through 20 years. Provides benefits such as prescription drugs, hospital care, primary and specialty care, preventive care, personal care services, private duty nursing, and durable medical equipment and supplies.

STAR+PLUS. Texas Medicaid managed care program for adults with disabilities.

Social Security Administration. Disability Office.

Texas Health and Human Services Commission. Case Management for Children and Pregnant Women

Texas Health and Human Services Commission. Children with Special Health Care Needs Services.

Texas Department of State Health Services: Consumer Guide to Health Care, for information about Medicaid, Medicaid managed care, and Children’s Health Insurance Program (CHIP) benefits in Texas.

Texas Health and Human Services Commission, Home and Community Based Services (HCBS).

Texas Health and Human Services Commission. Intellectual Disabilities & Related Conditions Assessment Resources. 

Texas Insurance Code, Title 8, Chapter 1201, Section 1201.059. Maintaining coverage for adults dependent on their parent’s health insurance.

Texas Medicaid Waiver programs and interest list (wait list):

Signing up for the interest list (a recommended step as early in a child’s life as possible). Call the Texas Health and Human Services Commission (HHSC) toll-free at 877-438-5658 for these Medicaid Waiver programs:

  • Home and Community-based Services
  • Texas Home Living 
  • Youth Empowerment Services

Texas Medicaid Buy-in Program 

Health Care for Adults with Intellectual and Developmental Disabilities 

Intellectual and Developmental Disabilities (IDD) Toolkit Telehealth Project. Developed for Tennessee health-care professionals, this site provides checklists for preventive care needs, typical screening approaches for individuals with certain disabilities, and other resources.

Housing

Some agencies that may provide local housing information and resources:

Independent Living

Texas Health and Human Services Commission. Independent living services, including a list of independent living centers in Texas.

United Cerebral Palsy. Provides a variety of resources about independent living, including home modification information.

Legal Issues

Disability Rights Texas. Protection and advocacy agency for people with disabilities in Texas.

Supported decision-making options—Guardianship:

Texas Council for Developmental Disabilities. Extending Health Insurance: What You Need to Know.

Texas Department of State Health Services, Adolescent Health Guide.  Downloadable guidelines on health and legal issues during the adolescent years.

Medical Transportation

Texas Health and Human Services Commission, Medical Transportation Program.

Organizational Resources

Care notebooks: 

Health-tracking Applications:

Permanency Planning

Permanency Planning Resource Guide

Surveys & Studies

2017-2018 National Survey of Children’s Health.

American Academy of Pediatrics, clinical report. (2018). Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home.

American Academy of Pediatrics, clinical report, with algorithm endorsed by AAP 2018 clinical report. (2011). Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home.

National Longitudinal Transition Study-2 (NLTS2).

Texas Department of State Health Services. Children and Youth with Special Health Care Needs 2018 Outreach Survey Report.

Technology Assistance

Quality Indicators for Assistive Technology (QIAT). Identifies, disseminates, and implements a set of widely-applicable quality indicators for assistive technology in school settings.

Texas Health and Human Services Commission. Texas Specialized Telecommunications Assistance Program (STAP).

Texas Technology Access Program. List of resources and possible funding sources in Texas for a variety of adaptive needs.

Texas Workforce Commission (TWC). Assistance with acquiring adaptive aids, vehicle modifications, or other technologies, including services for those who are blind or who have hearing impairments.

Got Transition.

Health Care Transition Initiative, Institute for Child Health Policy, University of Florida Health Care Transition Workbooks. Offer separate health-care transition workbook for ages 12 through 14 years, 15 through 17 years, and ages 18 years and older.

KASA: Kids As Self Advocates.

National Alliance for Caregiving.

National Center for Medical Home Information, Building Your Care Notebook. 

National Collaborative on Workforce and Disability.

National Collaborative on Workforce and Disability, The 411 on Disability Disclosure: A Workbook for Youth with Disabilities.

National Collaborative on Workforce and Disability. Paving the Way to Work: A Guide to Career-Focused Mentoring.

Navigate Life Texas, a multilingual website created by parents for parents of children with disabilities and special health-care needs. It offers comprehensive, relevant, and reliable information for families, professionals, advocates, and anyone working with children who have disabilities and their families. Sponsored by the Texas Interagency Task Force on Children with Special Needs.

Parent Companion First Five Years, a bilingual website focusing on young children with disabilities. It was created to comfort, inspire, and connect parents to helpful disability resources.

Seattle Children’s Hospital. Transitioning to Adult Healthcare. Transition resources and other helpful information about transition for children and adolescent with special health-care needs.

Social Security Administration’s Benefits for Children with Disability brochure.

Social Security Administration. (2019). What You Need To Know About Your Supplemental Security Income (SSI) When You Turn 18.

State Supported Living Centers.

Texas Department of Family and Protective Services. Preparation for Adult Living Program.

Texas Department of Family and Protective Services, Education and Voucher Training (ETV) Program.

Texas Department of Family and Protective Services. Circles of Support and Transition Plan Meetings web page.

Texas Department of Family and Protective Services. Extended Foster Care, including a brochure for youth in English and Spanish.

Texas Department of State Health Services. Texas Consumer Guide to Health Care.

Texas Department of State Health Services, Texas Immunization Registry (ImmTrac2). Adult consent form.

Texas Health and Human Services Commission, Children with Special Health Care Needs (CSHCN) Services Program. Family Support Services information.

Texas Health and Human Services Commission. Independent Living Services, including a list of independent living centers in Texas.

Texas Health and Human Services Commission. Day Activity and Health Services

Texas Health and Human Services Commission. Disability services web page.

Texas Health and Human Services Commission. Person-centered Planning.

Texas Health and Human Services Commission. Take Time Texas, a web page that provides a state inventory of respite services. 

Texas Health and Human Services Commission. Community Attendant Services.

Texas Parent to Parent, peer support for parents of children with special health-care needs.

Texas Project FIRST. Transition in the Individual Education Plan (IEP) website.

Texas Workforce Commission. Vocational Rehabilitation Services

Think College, a national organization dedicated to developing, expanding, and improving inclusive higher education options for people with intellectual disability. 

Health Day: News for Healthier Living. (2014). Coordinated Care Through ‘Medical Home’ Best for Chronically Ill Kids: Study.

Garcia-Iriarte, E., Balcazar, F., & Taylor-Ritzler, T. (2007). Analysis of case managers' support of youth with disabilities transitioning from school to work. Journal of Vocational Rehabilitation, 26(3):129-140.

International Fibrodysplasia Ossificans Progressiva Association

Rosenau, N. (2000). Do We Really Mean Families for All Children? Permanency Planning for Children with Developmental Disabilities. Policy Research Brief 11(2).

Schor, E. L. (2015). Transition: Changing Old Habits. Pediatrics, 135(6):958-960.

White, P., Schmidt, A., McManus, M., & Irwin, C. E. (2018). Readying Youth and Young Adults for Transition to Adult Care During Preventive Care Visits: New Clinician Toolkit. Journal of Adolescent Health, 63(2018):673−674.